Monday, February 23, 2009

I'm Just Starting To Realize...

That this whole liver FNH thing will never ever go away. I've been pretty good at trying to ignore the aching as it comes and goes, but these past 3 days it's been just a PITA!! I can't take deep breaths or it feels like a stabbing pain. I carry Ry around and it starts to hurt. I push around a heavy shopping cart and it hurts the whole next day. I was folding laundry today and there it was, I guess cause I was using my arms, I just don't know anymore. I describe the pain as a dull pinching pain that is on my right side and wraps around my back. It's just there until I make a sudden move or do something to aggrevate it then it's a sharp stabbing pain.
What frustrates me more is that technically, or according to every Dr. I've seen and from everything I've read, it's not supposed to hurt. Well guess what...IT DOES!! This last Dr. did say that the pain could be due to the fact that there are just so many tumors on my liver and they rub up against other organs. That does not sound good.
So I've decided to set out on my own to figure everything out. Maybe even get a second opinion. I'm calling tomorrow to get my records mailed to me so I can look everything over. I've been doing alot of reading and most every patient that I've come across knows the dimensions of their nodules. I don't. All I know is that when we started out in 2006 with my Dr. in Houston the largest one was 3 cm, but what about the others? I think I need to read through all my info myself to see what I need to do to keep on top of things. I never really recieved any follow up requirements. I think I was just really really relieved that it wasn't cancerous and I was ok with that so I didn't really take in the fact that I am going to have these tumors on my liver for the rest of my life. Since they're going to be there forever shouldn't I go in every so often to make sure that they don't grow or turn malignant? So I'm just going to look over everything and then give my gastro a call to see what sort of matinance needs to be done. I'm guessing nothing will take place right away, probably not until July since it will have been a year that I last had a procedure done. I know I have to just grin and bear it for now because liver resection is not an option for me. The pain has to be very very severe for me to consider it. I also don't want pain medication, I don't need to he hopped up on narcotic pain meds when I have 3 little ones to care for. I just want to make sure that I don't ignore it entirely and then the situation gets worse.

OK, during my travels across Google I came across this stuffed liver. Not sure why anyone would want one but for $16 you can own one.
I'm a LIVER not a fighter...

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